Friday, October 1, 2010

We Have the Test Results on Aubrey

We want to start by thanking you for your prayers and support during this time.  The Gallos have received so many emails, comments, texts, and phone calls, and though they couldn't respond, they have been greatly strengthened and encouraged your words.

We do have a big update today after long discussions between the Gallos and all the members of Aubrey's medical team, and the news is mostly encouraging.  Here's Andy.
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Thank you, thank you, thank you for all your prayers.  We finally got an idea of where we stand with this illness and although we're not yet out of the woods, Aubrey's alive and recovering.

Andy and Ashleigh
First of all, the doctors think they know what happened to Aubrey.  They tested fluid from her brain yesterday, and it came back positive for West Nile, a mosquito-borne virus.  This is the most likely cause of the encephalitis, and the doctors will send another blood test to confirm.  There is no medical treatment for the symptoms, and in light of the fact that it can be lethal, we're simply grateful Aubrey survived.

The long term outcome of West Nile encephalitis is very hard to predict.  There are cases of permanent brain injury, which may include memory problems, learning disabilities, damage to vision, severe fatigue, behavioral and movement disorders, and many others.  It could be up to a year before we know what damage there may be, but we continue to be open to God's immediate intervention regardless. 

We are happy to report that the MRI is very encouraging and generally looks good.  There is one spot in her brain that still appears to be inflamed, but all other areas look normal.  We praise God for this.
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Functionally, Aubrey's having trouble swallowing liquids, but she's doing well with solid foods.  However, she only takes solid foods in small amounts right now, and this needs to increase in order to nourish her.  This will probably require physical therapy.

Aubrey still seems somewhat confused and doesn't always comprehend what's being said to her.  She is moving her arms and legs, but is too weak to support her neck and trunk.  She isn't speaking, and she's still having abnormal, involuntary movements of her mouth, tongue, arms, and legs (which could be some of the post-West Nile symptoms I mentioned above).  It is also possible that the medication could be causing this, but the neurologist doesn't think that's the case.
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We are trying our best to focus on the victories that have been happening daily.  One week ago, we didn't know if Aubrey would live to age three.  Yet by Tuesday, she came off the ventilator and was able to get all the machines removed from her body.  She hasn't had any more seizures. The MRI generally looks good.  She is alive and recognizes us - and today, she's leaving the Pediatric Intensive Care Unit.  Thank You, Lord.
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Aubrey and Dad asleep last night
Aubrey potentially has a long road of recovery ahead of her, and the future is still uncertain. The past two days have been very, very difficult for Ashleigh and me, since Aubrey literally needs someone with her 24 hours a day.  When she is awake, she sometimes acts very agitated (Ashleigh had to hold her down for two hours yesterday), and it is very unnerving to see her constantly moving involuntarily.

Regardless, all our hopes, we set our hopes on the risen Christ.  He has come to our rescue and healed Aubrey in ways that the doctors couldn't.  At the same time, we are thankful for all that the medical staff has done.  God definitely used their hands, feet, and equipment to sustain Aubrey's life when it was dangling by a thread.
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We don't know how to adequately thank the hundreds of you from all over the world who have made it a priority to pray for Aubrey and our family.  You gathered around us in our darkest hour, picked up our mat, carried us to Jesus, and He has provided healing where there was hopelessness (Luke 5:17-26).

Aubrey and Lilly
For those of you who have carried us through this roller coaster week, we thank you for your prayers and speak a blessing over your life.  For those who want to keep up with Aubrey's progress as we take small steps toward healing, we will only update the blog when we have a specific request or reach a milestone.  If you want to keep up with that, it would be best for you to subscribe by email, and you can do that by subscribing in the upper right hand corner of the blog. 
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Aubrey has some ongoing needs for which you can pray, and here they are:
  1. That she never have another seizure.
  2. That she will have a healthy appetite.
  3. That she will have a full recovery from any damage to her body.
Please also pray for continued strength for Ashleigh, Lilly, James, and me.  We know Aubrey's recovery will require a team effort as a family.  We're all going to need a lot of grace.  Although we've finally turned a major corner, we've discovered that around that corner is another long road.

So here we go.  Thanks for being here for us on the journey.

10 comments:

  1. Aubrey will live and declare the Glory of God. No weapon formed against her will prosper. Aubrey will live a long and full life. We stand with you, and we call on the Healer to come and touch your precious little girl. We know that if God is for Aubrey than who can be against her. She is surrounded by the mighty hands of Jesus. She has found a refuge in the shadow of the Almighty. Yes, Jesus is very familiar with Aubrey's hands for he has known her even before you did. Rest in the loving arm's of Christ as you walk these days out. He is always good, no matter what you may see before you. We are praying for a full recovering as if this had never happened. May God fill you with a faith like you have never known!!!


    For the sake of His name,


    Caleb(Joshua's brother), Rebecca, and the boys!!!
    Cary, NC

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  2. Praise HIM in the highest!!! What GOOD news!

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  3. Thanks to all who continue to follow and pray. Aubrey is essentially functioning at the level of an infant right now and will likely need a long time to recover (barring more immediate divine intervention). There is hope for full recovery and that's what we are praying for, even if it takes months or years. We will continue to post updates as she makes progress.

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  4. That is a wonderful and touching daughter & Dad picture. Such a beautiful picture of rest ("Come to me, all who are weary and heavy laden, and I will give you rest"). And can't you just see, with your eye of faith, both wrapped in the loving arms of Him to whom we cry out, "Abba! Father!"?
    Andy and Ashleigh, we'll be praying for you and your children throughout your road ahead.

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  5. Hi guys-this is an excerpt from a beautiful prayer in our Celtic Daily Prayer book:
    Compline for Friday
    Christ with me sleeping
    Christ with me waking,
    Christ with me watching,
    each day and each night.

    Save us, Lord, while we are awake,
    guard us while we are asleep; that, awake, we may watch with Christ,
    and, asleep, may rest in His peace.

    In the name of the Father precious,
    and of the Spirit of healing balm.
    In the name of the Lord Jesus,
    I lay me down to rest.

    The peace of all peace be mine this night, in the name of the Father, and of the Son, and of the Holy Spirit. Amen.

    Lord, we thank you and praise You for the healing work you have done so far in Aubrey's body. We pray that Your spirit would be a healing balm, not only for Aubrey, but for the entire Gallo family. Please strengthen and help them with Your might hand. In Jesus' name.

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  6. We have been praying for your little girl and family all week. God continues to be with you as you round this new corner in the road. I have been thinking so much about the story in Luke that you have metnion, Andy. You are fully supported with prayers from our family.

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  7. Have you considered off label uses of hyperbaric oxygen treatments for your daughter for encephalitis? A local vascular surgeon alerted me to this type of medicine, as I fight multiple sclerosis. This surgeon's son suffers from autism and he purchased an AMA approved home unit for his child, which has produced great benefits for him. The brand is Oxyhealth, and the model is Vitaris 320. Both parent and child can fit into this 32 inch chamber. I have experienced several treatments personally as well, and find them extremely beneficial. The unit delivers 95% oxygen at 4.1 PSI or 1.3 ATA equal to a depth of 11 feet below sea level. Multiple sclerosis, and and all forms of inflammation can benefit from hyperbarics.

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  8. know that you are held in the loving arms of god at all times. with him, nothing is impossible. all of us following aubrey's story, whether we know you personally or not, are united in prayer and love for you.

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  9. Hi, I'm Emily and a relative of a friend who asked us to pray for Aubrey. We are praying here in California for her recovery. My younger sister was very ill as a child and had several strokes and an uncountable number of seizures in her early years. Although this was for a very different reason than Aubrey, she has recovered from near death and brain surgery at four years old to a fabulous normal 25 year old today! We pray the same for your sweet daughter. Blessings from here.

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  10. We praise the Lord with you for saving Aubrey's life. We will continue to pray for healing, strength, peace and rest for Aubrey. For you Andy & Ashleigh and for Lilly & James, we pray for peace, grace, strength and rest. May you always know that God is with you.

    love in Christ,
    Tom & Dee Scriven

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