Aubrey's Out of the Pediatric ICU

For those of you who are continuing to keep up with Aubrey's progress, thank you very much.  We believe your prayers really make a difference, so thanks for continuing to pray.  Here's an update from Andy.

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Yesterday, Aubrey moved out of the Pediatric ICU to the regular pediatric floor.  She is definitely more awake, but she is very emotionally fragile and agitated at times, especially later in the day.  

Ashleigh and I have been diligently working with her to improve her overall strength, particularly her neck and truck control, and we are seeing some small progress.  For the most part, she does not interact with us, but she does have brief periods during the day when she seems more lucid and happy and will play peek-a-boo with us for two to three minutes.  

The doctors continue to wean her seizure medications, and she has not shown more seizure activity.  That's great news.

She continues to have involuntary movements of her arms, legs, and mouth at times, and she has been grinding her teeth (especially when agitated), but we are hopeful that this will not be permanent.  She is eating more but still has not reached her calorie goal, which needs to be reached by Monday morning.  If she does not reach this goal, they may consider placing a feeding tube temporarily for nutrition and hydration.  

We are hoping to transition her to a pediatric inpatient rehabilitation hospital as early as Wednesday, if beds are available.

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Please join us in believing God for the following:

1. That Aubrey's mind will clear and the agitation will end
2. That she will interact with us more
3. That the involuntary movements will cease
4. That she will never have another seizure
5. That she will eat and drink enough so that she doesn't require a feeding tube
6. That there will be an available room at the inpatient rehabilitation hospital.

Ashleigh and I are absolutely exhausted due to lack of sleep and working with Aubrey almost all day (my father and sister are coming to give us breaks during the day though).  Please pray that our marriage will remain strong, that our daughter Lilly will remain strong and happy, and that we will continue to put our hope and trust in the Lord.